#BioBank

Trust is no longer enough: secure data sharing requires international collaboration across institutions and governments. Trust is no longer enough: secure data sharing requires international collaboration across institutions and governments.

Longitudinal studies are a research jewel, shedding light on motor neurone disease, cot deaths, Alzheimer’s and more. Don’t let the security breach in China put you off joining one, says Guardian columnist Polly Toynbee

UK Biobank battles repeated GitHub leaks of 500,000 volunteers' health and genetic data, issuing 110 DMCA notices while full datasets surface for sale in China. Oxford researcher Luc Rocher's tracker exposes the scale and risks of re-identification.

Technology minister tells Commons ‘de-identified’ information from UK Biobank advertised for sale on Alibaba

Health data from 500,000 UK Biobank participants was found listed for sale online in China, raising concerns over research access misuse and data security.

The government said medical data of 500,000 people was affected but no personally identifiable information had been made available.

The British government is investigating how health data volunteered to a charity for research purposes wound up for sale via three vendors on the Alibaba e-commerce site in China. One listing had 500,000 people's data.

From The Register: Medical data of 500k Biobank volunteers listed for sale on Alibaba, UK minister reveals